Thursday, April 26, 2012

Why I Did What I Did


My recovery from a Bilateral Mastectomy with immediate reconstruction has not been smooth sailing. Because of chronic pain and concerns regarding my final outcome, I elected to have revision surgery prior to my exchange from Tissue Expanders to Implants.


BEFORE
Evidence of the sloppy workmanship of
Memorial Sloan Kettering's Head Plastic/Reconstructive Surgeon
 (aka DicDoc).



AFTER


Day two, post surgery.
Surgery performed by Dr. Sandra Margoles.


DicDoc assured me that revisions could be made during the exchange from Tissue Expanders to Implants but that I should not expect to be symmetrical. 

Three separate opinions recommended that the revisions be made before the exchange and that I had the right to be symmetrical. 

For the record, the government agrees that cancer patients have the right to have symmetrical breasts, which is why insurance companies must pay for revisions and breast lifts to a non-cancer breast to match the breast that was reconstructed due to cancer. 

It was a gamble but I'm glad I did it. I am in more pain then I anticipated but I know its temporary.

I will begin receiving saline "fills" in two weeks.  The fills stretch the skin and the muscle so that the implant will fit under the muscle. 

Once the exchange is complete, I will focus on nipples and then... areola.  Areola is achieved by tattooing and I'm entertaining options other than boring, brown and round. 

Suggestions welcomed and encouraged! 



xo,MonkeymedicatedME



Saturday, April 14, 2012

The Mystery behind ROOM 408



I am on the shady side of the street, sitting at a small metal table outside the Lafayette Hotel on St. Charles Avenue, in New Orleans, Louisiana. An enticing breeze follows the streetcar line and with it comes the sweet scent of honeysuckle cascading from a third floor balcony of a neighboring, newly renovated townhouse.

Pitted brick sidewalks mix locals with tourists, and it is easy to spot those who call this city home. Their stride is wide and slow, and their arms wittingly sway. It's so different from the guarded, east-coast posture I've adapted and long to let go of.

There are three tables to choose from. All seat four and serve no purpose other than to beg you to rest. I pick the one that is positioned directly in front of a large window that has a ribbon of smoked glass and the word TWIRL etched in it.

My husband is playing a round of golf, and I have the day to do as I please.

Miss Lucy, my five and a half pound shih tzu, joins me. She attracts attention by wagging her tail like a flamenco fan on a smoldering summer day. She is a tuxedo shih tzu - primarily black with a splash of white that begins at her mouth, drips down her chest, and dots her toes.

Today, we are a perfect match. I am wearing a black, free flowing dress, a white, wide brimmed hat with a bellowing black bow, and white, wedged, sandals.

Built in 1916, the Lafayette hotel has seen better days, but none of this matters to us because we love it here. It is a small boutique hotel steeped in Parisian charm. The rooms are decorated with tarnished brass, chipped marble, stained carpets, and tired antiques. Thick crown molding outlines high ceilings, french doors and large paned windows punctuated in hefty, sullied silk curtains trimmed with ornate tassels. The color scheme is french blue, gold, and maroon - my favorite.

We have been coming here for more than 5 years and we've watched the hotel change hands twice. The current owners dismantled most of the long-standing staff which was the main reason we overlooked the idiosyncrasies of this aging hotel. But change here, as in life, is inevitable.

My plan is to relax, reward and recharge. Relax my mind from three months of intense worry, reward myself with libations and live music, and recharge my creativity by writing.

I love the city of New Orleans. I love the imagination and the artistry that flourishes here. I love the diversity of its people, the depth of its music, and the tantalizing taste of its cuisine. I also acknowledge and respect the wide range of struggle that percolate here.

I begin each day with a stroll into the french quarter. Today, as I round the corner of Royal Street and head up Esplanade, I spot a man in a black kilt, t-shirt, and work boots. He is exiting his compact pick-up truck with a cooler in hand. I want to ask him where he is going but instead, I wish him a good-morning. He returns my greeting with a noble node and a smile that includes his eyes. I haven't seen a man in a kilt since Burning Man. It is common attire there, and this is another reason why I love New Orleans. The city implements many Burning Man principles, mainly, radical self expression and inclusion.

Also like Burning Man, New Orleans celebrates life and art simultaneously. People decorate their bicycles, dress imaginatively, dance without care, and greet the day with wide eyes and open arms.  

Yesterday, we were entertained in a highly unusual way. After a day of perusing our favorite bistro's, bars and antique shops, we return to our suite and are captivated by the sound of our neighbors engaged in a late day tryst. Because our living-room area is separated from their bedroom by paper-thin walls and a hollow adjoining door with an inch of space at its base, every heated breath and moan is audible.

We think about going for a walk, or retreating to our bedroom, but my voyeuristic curiosity gets the best of me. It is like watching porn blind. She rides him with a vengeance and he, clearly exhausted, does his best to oblige. Twice he falls asleep and without missing a beat, she slaps him, hard. "Wake up, wake up," she orders. "I'm up, I'm up," he replies.  Clearly, she wants more from her pony ride.

After twenty-three minutes of banging, spanking, and squeals of joy, it is over and I am left wanting more. I need a visual. What do they look like? How old are they? Are they new to each other or seasoned veterans? Nothing about their lovemaking is vanilla.

And worse, I can't help but compare. Should I be more assertive, more explicit? Should I thread shouts of delight with demeaning directives? When, how and why does pain ignite pleasure? Is cooing and cuddling boring bedroom behavior?

Mr. Cooked, my bedfellow of 14 plus years, is convinced our neighbor is a man he spotted twice earlier. A man in his late 50's with white hair and wire-rimmed sunglasses. I too saw this man, sitting in one of the metal chairs just outside our hotel. He was waiting for someone. I guess it could have been his wife. He looked impatient as he tapped his sneakers together and sucked on his cigarette. He was wearing a red, "Thing 1" t-shirt that was tight across his bulging belly. Clearly this was not a man who could trot (viagra or not) for twenty-three minutes.

I envision our neighbor being the robotic looking naval officer that passed us during our morning coffee outside PJ's cafe.  He is in his early thirty's with broad shoulders, a buxom bottom, and abs of steel. I imagine that, because he is stationed here briefly, he be-lines to Bourbon Street, finds a young fraulein fresh from spring break, and woos her back to his hotel. After too much tequila, and what he believes might possibly be the best sex of his life, he wakes to find his watch, (a rolex knockoff) missing, along with what is left of his cash and a girl who's name escapes him.

So now you see the real reason why I am perched here, outside my hotel. I am waiting for the couple in room 408 to appear so that I can put a face to these feverish fornicators.

I sit at my metal table until the soothing shade is replaced with glaring, late day sun. I sit and watch couples come and go. I tally them up, subtracted the singles, couples with canes, and those with more than one dog.

Finally, in desperation, I implement a ruse. I go to the front desk and ask Dwayne, the new manager, about the couple in room 408. I tell Dwayne that I spotted them in the lobby and am convinced I met them here, this time last year. Dwayne tells me that they are from Illinois and that this is their first time visiting New Orleans.

Let it go, Shannon.  Let it go.

"Is that so," I question.
"Yes, I'm certain of it," says Dwayne.
"Is he, by any chance, in the navy?" I ask.
"I have no idea," says Dwayne.
"So you never saw him in uniform?"
"Not during my shift," insists Dwayne.

I can't let it go.

"Is the gentleman in 408 younger or older than I?"
"That's hard to say."
"It's okay Dwayne, you can be honest."
"I'm not sure that I can, Ma'am."

Still, can't let it go and please stop calling me Ma'am.

"Did the gentleman in 408 ask if you had a gym?"
"The Hotel does NOT have a gym," explains Dwayne.
"Yes, I am aware of that, but did he ask if there was one nearby?"
"NO, he did not."
"Does he look like a man who frequents the gym on a regular basis?"
"I'm not sure how to answer that, Ma'am" says Dwayne.

Dwayne is clearly baffled by my line of questioning and I am growing increasingly annoyed by his use of the word "Ma'am."

I retreat to my room and strategize a plan C.

I put the ice bucket near the front door and wait in silence for the sound of footsteps heading down the hallway. When they approach, I will exit, bucket in hand, as if I am nonchalantly on my way to the ice machine.

Twenty some-odd minutes later, I hear the ding of the elevator.

Flustered, I rush out the door, shoeless and bucket-less, and find the man from 407 smiling at me.
"Where are you going in such a hurry honey?" asks my husband.

Mr. Cooked pops open a cold beer, kicks off his shoes and rests, while my curiosity run wild.

An hour or so later, I detect loud thumping. I rush to our adjoining wall and am disappointed to discover that it is the echo of an amplified bass guitar and drums, warming up for tonights concert in the park.

Another lovely feature of the hotel is its location. It is situated on the rim of the art and warehouse district, next to historic Lafayette Square Park. Every Wednesday there is a free concert coupled with an eclectic collection of vendors from the downtown restaurants. Tonights entertainment is a local favorite, Ivan Neville's Dumpstaphunk. The park will be jammed and we will have easy access in and out.

After freshening up, we meet friends in the park and join in on the fun. The music is loud but that doesn't stop me from talking about our neighbors in room 408.

A bowl of macaroni and cheese and several vodka tonics later, we retreat to our room where there is nothing but silence.

We wait for the crowd in the park to disperse before coming back with Miss Lucy for the days, final dog walk.

It is astounding to see the work that goes into setting up and dismantling this weekly events. The crew begins early and finishes late. When it's over, everything is restored to its original, pristine state.

In the shadows I spot a familiar face. It is the man in the kilt. He is breaking down one of the concession stands. His smile is as wide as it was this morning.

By definition New Orleans is a city, but it's small enough that if you spend more than a days here you will bump into familiar faces. Like Vivian, originally from South Africa, who wears vintage Paris hats and earns a living running one of the mule driven carriages - hers being the only one equipped with a bubble machine. Or Manny and Marsha, who recently adopted two pit bulls that were abandoned in the Bayou. Or the Judge, who really is a judge, and frequents our favorite bar, perhaps a bit too regularly.

On our way back, we merge with a couple as they exit the hotel's adjoining restaurant. He lets go of her waist, long enough to open the lobby door.

Could this be our neighbors?

He is "money-upped" (a phrase borrowed from my husband). A man in his late 50's with wavy brown hair and round, tortes shell glasses. He is wearing a blue sports jacket, muted pink shirt, contrasting bow tie, pink socks, and penny loafers.

She is an attractive, curvaceous woman in her early thirty's with long, flaming red hair and bangs that bleed past her brow and into her eyes. Her dressed is conservative, if it were not for her jam-packed cigarette slacks, stacked heels, and bombshell cleavage erupting from a black lace bra under a crisp, white blouse.

She focuses on Miss Lucy, while the rest of us focus on the obvious - her bulging breasts. I zero in on the top three buttons of her shirt, convinced they are on the verge of popping.

This must be our neighbors.

She asks the usual questions, "What type of dog is she?" How old is she?" and "What is her name?"

Before I have a chance to answer, we are interrupted by the ding of an arriving elevator.

There are five floors to choose from, twelve rooms per floor - six on the east side and six on the west.

We step in and, with great anticipation, wait for them to press their floor.

It is the same as ours - floor number four.

Please let this be our neighbors.

It feels a bit awkward when we step off the elevator and all turn right. We are in the lead and the first to arrive at our room.

Arm and arm, they squeeze passed us, and proceed to the door at the end of the hallway - room number 408.

Finally, we have met our neighbors!

I can hardly contain myself. I am more excited than a pig in a parade. I want to squeal with laughter but instead, I tip-toe to our adjoining wall and wait.

Mr. Cooked unscrews a wine bottle. "Shhhhh!" I tell him.
Mr. Cooked unties his sneakers.  "SHHHHH!" I repeat.

It didn't take long for the games to begin.

This time, she is playful and he is stern.

"Give it to me, give it to me" she pleads.

"NO" he replies.

No? Why won't he give it to her? Oh... come... on. Let her have it! Don't make me regret missing Late Nights with Chelsea Handler.

Was she bad? Is he out of medication?

"Please, please, please..." she begs.

She is no longer in charge and I can't, for the life of me, understand why he won't accommodate her.

She promises to take good care of IT and I believe her. At this point she is so insistent, that everyone on the fourth floor believes her. I can hear her stomping her stacked heals and I make a mental note - must remember to wear heals to bed.

She starts to cry.

The whining is agonizing and I wish I could explain to her what a turn off it is.

I am wrong.
It is working.
She is winning.

"Okay, Okay," he relinquishes.

His resign, launches her shrills of joy, and the wild ruckus begins!

She is happy.
He is happy.
We are all happy.

Once again, she gets what she wants...



This time, it's a puppy.


xo,MonkeyinNolaMe


Sunday, April 8, 2012

Happy Easter


Fairmont State University - Fairmont, West Virginia

Today is Easter. To me, holidays have always been about my father. Because I did not grow up living with my father, holidays (especially Easter) gave us a chance to play together.

As a child, this was our time to ski or run together.  As an adult, this was our time to share a day, a meal, a drink, a laugh.

I deliberately aligned myself with my father. I shadowed him. I shared my highs and lows with him. And in the end, I carried him.

In his own way, my father proved to me, that I was loved. In return, that told me that I was worthy of love.

Today, on the first holiday since his passing, I am at Fairmont State University - his old college stomping grounds.

I am crying because I miss him. I am crying harder because I wish I took the trip while he was still with us.

I want to walk beside him. I want him to show me where he studied, where he ate, where he slept, where he played.

I love you Dad.

Happy Easter everyone.  Happy Easter... 


 Easter 2011

Friday, April 6, 2012

Slapping Stephen King


Jack Nicholson as Jack Torrance in the film adaptation of Stephen King's The Shining. 
Photograph: Ronald Grant


Damn you Stephen King!!! You brought it back. You pulled it from a place of rest. You hit me with it - hard. You hit me till my voice stammered, my body froze. You hit me till my fingers hovering silently above the keys.

You hit me with my own insecurities. All it took was a few lines from your book, "Stephen King On Writing - A Memoir of the Craft."

I was horrified by what you told me, "If I want to be a writer, I must do two things above all others: read a lot and write a lot.  There's no way around these two things, no shortcuts."

My first apartment without a living, breathing man, was filled with dead ones - Yeats, Twain, Hemingway, Faulkner, Tolstoy... I fanned their pages, bent their binders, dented their covers, put markers at page 167, 240, 484, moved it forward and backwards, as if flipping through them meant I knew them.

When I studied Tolstoy's War and Peace, I pretended I was a speed reader and finger feed my way to page 842 before I lost interest. He was too intense.

So I guess I'm not a writer. I don't read enough. I don't write enough. I am just a women who spends a large chunk of her life, playing with the tic, tic, tic, space, tap, tap, tap, return, of her laptop.

I don't know how to dream up stories, or unfold complicated plots. I tap what haunts me. I tap what lingers at the back of my throat.

I am a blogger who thrives on your reply.

I blog because I don't know how to write a book. I blog because facebook status updates, and cancer discussion boards are not enough. I blog because of people like Chris.

Today, two days late for my INSECURE WRITER'S SUPPORT GROUP post, an unknown commenter named Chris tells me...

I've just now stumbled upon your blog. I've tended to peruse blogs relating to catstir, since my diagnosis back in September. I even drunkenly started one, though I am normally too shy and insecure and neglectful of it to comment and therefore leave a trace of it somehow. But, I'll take that risk because I have to comment tonight after reading what you said about catstir being a gift. Usually, I am loathe to call it a gift. I keep trying to find a different word like "lesson" or something else. However, you made me look at it differently tonight with these words: "...I received my first catstir gift - knowing I wanted to live". 

I was slowly recovering from one of the worst and scariest bouts of clinical depression I'd ever had right before I found out I had this. Catstir did, indeed, mysteriously (to me)take the word "suicide" out of my mental tape player. That truly is a gift. There is no other way of looking at it anymore. "Knowing I want to live and fight to live". I can't even express how heartbroken I am for the loss of your son. Thank you for speaking up about depression...I have to stop now because I'm really in need of a tissue (sorry, I can't help it). I just wanted to let you know that your words, and your willingness to share them, are a gift as well.  ~Chris


I blog knowing there are those who relate to my pain and my joy. People who are not afraid to speak their truth - who are not afraid to cry openly or laugh loudly.

Thank you for reminding me why I tap and slap away at what moves me, what stays with me, what demands to be heard.

With love and gratitude...

xo,MOnkeyME

P.S. There was this one day, after band camp and before reading Stephen King, when I was almost certain I was a writer.  And this is some of what I wrote:  MY WRITING



SPECIAL THANKS to the old man who blames his neighbors, republicans and fox news for all his woes.  Who enjoys throwing rocks at geese, printing out pages of my blog, and passing it round for others to read. Yes, I'll take all the readers I can get - especially the lonely ones.

Sunday, April 1, 2012

Basketball, Basketball

"Keep living your life out loud." words of wisdom courtesy of Chris McQueeney


photo courtesy of Sports Blog Moment 


"Basketball, basketball..." is what echoes in my mind when I remember my fathers final days. I have yet to grieve, or fully accept, his death. But today is a good day to begin.  

"Great weather, if you're a duck," is how my father would sum it up - a weekend full of damp drizzle mixed with spouts rain.

I stay inside, surf through pictures and video's of him, wishing I had more.

When I'm not doing this, I'm surfing the cancer discussion boards, gathering stories and information from those who are battling the disease.

Living with the fear of cancer is my next big hurtle.

"We'll have to watch you closely," said my doctor.  
"What are you looking for?" I ask. 
"Primarily ovarian cancer, colon cancer, and - because you had a melanoma on your back and breast cancer in front - lung cancer. Your odds of getting cancer in the next ten years are..."
"STOP!!!" I shout.   

Tonight is the NCAA Women's semi-finals college basketball game. It is Notre Damn vs UConn. The same matchup we saw at our last, live, game together. 


I don't remember who won, but it must have been UConn. My father idolized their head coach, Geno Auriemma, and his "girls" were unstoppable. 

 photo via AP

Maya Moore, Sue Bird, Diana Taurasi, and Tina Charles were some of his favorites. When he spoke of them they sounded more like daughters then players.  I'm certain he did this to make me jealous. And it worked.

When I think of how he lived, I have memories that stretch miles. When I think of how he died - at home, peacefully - I reflect on his final three days...  

On the Friday before his death, my father asks to see Jackson - his great grandson. When I tell him Jackson is at school he repeats, "Jackson at school, Jackson at school..." over and over again. 

When Jackson comes home from school, my father turns his head towards him, and repeats, "Basketball, Basketball." 

Jackson loves basketball. His backyard hoop rests just outside my father's bedroom window. Jackson takes great grandpa's cue, and goes outside to shoot some hoops. 

My fathers eyes, ears and mind, are alert, as he focuses on the bounce, bang and swish of basketball, basketball.

On Saturday, my father turns towards me and says, "Lindsay, Lindsay." 

I text my daughter and tell her that Grandpa wants to see her. When she arrives his eyes tear, his mouth quivers, as he repeats, over and over again, "I love you, I love you, I love you."

On Sunday, my father tells me, "Pennsylvania, Pennsylvania."

I know exactly what he means. 

My husband is in Pennsylvania visiting his family and I am convinced I am better off without him.  I am convinced he doesn't love me enough, but my father knows he does.

I listen to my father, call my husband, and ask him to come home.

My relationship with my sister, my fathers only other living child, had been strained for many years. She is on her way here and I am dreading it. To me, she is the enemy.

When she arrives, we take turns sitting beside him - stroking his hair, clutching his hand, replaying memories of childhood mischief and merriment.

As the day grows dark, after the priest delivers his last rights, my sister reads him passages from her bible and I read him Dr. Seuss.

He waits.  He waits until it is just my sister and I, alone together.  He waits until the strain lifts and the laughter is sincere.  He waits for us to giggle, as little girls do. As, once upon a time, we often did. 

And then, after three, deep, gasps of air, he leaves. 

I close his eyes. 

I kiss his forehead. 

I leave while his skin is still pink and warm.

I leave holding my sister hand. I instantly understand, that we are the last, living part of him.

I leave with tears and a smile.




Writing about my father is a reoccurring theme. Play Date for Dad is my favorite. 

xo, MOnkeYME


Wednesday, March 28, 2012

Shannon needs...


photo courtesy of Google Image. Results of a "Shannon needs"  search.


This post is inspired by a facebook update by my favorite silver friend, Jesse Fowler.

I'm feeling playful (a sign that I'm healing!) so I wanted to play along. 

Jesse's prompt said to google your name, and the word "needs."

Jesse googled "Jesse needs" and got some very telling search results: 

Jesse needs to get out and live! 
Jesse needs your help unscrewing the inscrutable.
Jesse needs help playing with his ball.
Jesse needs to grow up.
Jesse needs to apologize to Christians before representing liberty.
Jesse needs to learn to set firm boundaries. 
Jesse needs a hug. 

Jesse will tell you, that google was right!

This is Jesse.


Here Jesse is sad because he just received a violation for having silver skin.



But Jesse challenged it.  Went to court, with legal assistance from lovely Julie, played the race card,


and won. 

If none of this makes sense to you, it's okay. 
This is a day on the playa at Burning Man, 2011.
An annual event that I've taken part in for the last nine years. 

If you've read me for an extended period of time, you're probably tired of hearing me tell my Burning Man tales, so I'll leave it at that.  But if you want to know more, I'll leave some post suggestions at the bottom. 

Anyway...

As I mentioned, I wanted to play, so I googled "Shannon needs" 
And this is what I got:

Shannon needs an attitude check.
Shannon needs help.
Shannon needs a DROID. 
Shannon needs shelter from the storm. 
Shannon needs your help. 
Shannon needs to take third grade english again. 
Shannon needs saving. 

MY needs are completely different from Jesse's. How does google know? Everything is spot on except for the DROID.  I had a DROID and didn't like it. Now I have an Iphone and I like my Iphone, so Shannon doesn't need a DROID. 

Want to play along? 
Please say you do! 
Google your name and the word "needs" and tell me what google says about you. 




Top "Burning Man Green Monkey"google search stories: 

The Waiting Place contains my favorite Burning Man video of all times. 


xoMOnkeyME


Friday, March 23, 2012

GROWTH


"Yes, they're fake. The real ones tried to kill me!"



I saw that quote under a survivors bio, at breastcancer.org.  It made me laugh and laughter is good.

This morning, during coffee, I asked my husband if I had the dates right...

"I had my annual mammogram on December 29th and was told I needed a biopsy, you were laid off from your job on January 19th, I was diagnosed with cancer on January 20th, and my Dad died on January 29th - is that right?" I asked.

"Yes, and we had surgery on March 5th," he added.  When he speaks of my cancer, he says "we" and this has a calming effect on me. It tells me I am not alone.

I, we, have yet to properly mourn my fathers death or the loss of my breasts.  We are, however, grateful for the extended amount time spent together. My husband has attended all of my doctor appointments and has been a key component in my decision making process. His calm, logical side, balances my, fierce, emotional side.  

The whole breast cancer concept is mind boggling.  You wake up one morning and discover you have a life threatening illness.  It's hard to come to terms with because you don't feel sick, and in my case, I didn't have any tangible proof - no lump, no blood count gone ascu, no family history to justify it. All I had were these itty-bitty-teeny-tiny microcalcifications that appeared under high resolution film, on my annual mammogram. Three specks that looked quiet adorable at first glance.  

Once I discovered I had cancer, after my initial stunned stupid response wore off, I diligently set out to learn everything I could about the disease and the best way to go about fighting it. This included educating myself on genetics, drug therapy, chemotherapy, and radiation.  Once I felt I had the knowledge I needed to form an educated opinion, I focused on treating it, and learned there are many choices involved in treating cancer.

Once I decided how I wanted to treat my cancer, I set out to find a compassionate breast surgeon who respected my decisions. This is a critical step because your breast surgeon is the one who will remove your cancer. A mistake could cost you your life. I interviewed 4 breast surgeons before I found one that I had total confidence in. I chose, Dr. Alexander Heerdt and she was magnificent. She consistently treated me with dignity and respect. She listened and addressed all of my concerns. Thanks to her meticulous, and highly skilled efforts, I am able to say I am cancer free. 

After I picked my breast surgeon I needed to find a reconstructive surgeon who works with the breast surgeon. Their schedules have to mesh because the reconstructive surgeon steps in immediately following the removal of my breasts.

And then finally, I had to consider the hospital. What is their infection rate?  What primary surgery's take place there?

These three components have to fit together and all must be considered "in-network" on your insurance plan.

It's a daunting process to say the least.  And I must admit, my main focus was the cancer.  When it came to who would do my reconstruction, I lost steam.  I thought I was safe riding on the white coat tails of  the head reconstruction breast surgeon at Memorial Sloan Kettering. 

I would love to tell you that the opening "UNDER CONSTRUCTION" photo is me. But, sadly, it is not. This is me, 18 days after my bilateral (double) mastectomy...


Hidden beneath the row of stitches are "TE's" (tissue expanders) or what I like to refer to as deflated non-regulation sized basketballs. Notice the two small, round, bandaids above each incision? This is the port where they stuck the needle for my first "fill" of saline last Tuesday. They need to slowly fill these up but as you might notice, there is a problem.  They are not symmetrical and the upper chest section of my "lower side" has collapsed. My breast reconstructive surgeon told me not to worry, that they will "fix it" when they do the "exchange" (see how you're learning all the cancer jargon). But that didn't make sense to me so I went for a second, post-op, opinion. Besides being uneven, the lower expander is sitting on the lower lip of my ribcage.  I can't breath without pain.  It's not a horrible pain but its uncomfortable.  It feels like I bruised a rib (and maybe I did).

My second opinion confirmed my suspicion - my right TE is not set correctly and needs to come out.  Worse, my second opinion stated that the surgeon should have NEVER filled the expander because it was misplaced.

To make absolutely certain, I'm going for a third opinion on Monday. This will be interesting because it is a surgeon who is part of Memorial Sloan Kettering hospital and works with (under) the surgeon who placed my TE's. 

Somewhere between all the poking, prodding, smooching, scalping, and stitching, my breasts lost their dignity.  Which is why, I suppose, I have no problem showing you the various stages of my recovery. On top of all that, it is important for people to understand that "breast reconstruction" is NOT the same as a boob job. This is a comment I hear often, "lucky you, you're getting a boob job!"

Regarding my last post, titled BLAME, to me it was not a "woe is me" post - it was a mind opening, heart fueled, self evolving post.  And damn, it felt good to write it. 

As I often say, I don't sugar coat anything. Nothing on my blog is off limits. I have dissected everything and anyone who has had an effect (positive or negative) on my life. I have pissed off a lot of people.  So far, I still have the support of my husband, some family, and a growing group of friends.  All of you are attracted to one key component... PERSONAL GROWTH.  For me, that is what this journey here is all about.

So if you catch me bitching or blaming, it's okay.  It's just me working on the stuff I need to learn. And if a second surgery is warranted, it's okay. They'll get it right and I'll have more to write. 

One thing I will never be, is a victim. 

xoxo,MonkeyME 

"Have patience with all things, but chiefly have patience with yourself. Do not lose courage in considering your own imperfections but instantly set about remedying them -- every day begin the task anew." Saint Francis de Sales



If you, are someone you know, has been diagnosed with breast cancer, 
breastcancer.org is a wonderful resource.

Wednesday, March 21, 2012

BLAME

...part of the cure is to wish to be cured. SENECA


Today, I am stuck on blame. And, I realize this is a reoccurring theme in my life.

There are days when I blame entitlement, or impoverishment, or complacency.

There are days when I blame heredity or bureaucracy, or society.

There are days when I blame the weather.

There are dark days when I blame my husband, or a friend, or a family member.

But mostly, I blame myself.

Everything gets heavy when I bring blame home with me.  Roll in it.  Sleep with it.  Awake to it.

Today, I blame my neighbor.

My superficial, elitist neighbor, has taken it upon himself to install thick black netting along the top lip of our shared carport to prevent the birds from building their nests.

I love watching the birds. It is one of the simple joys in life. I listen to their song. I watch their flight. I watch them tend to their young.

I don't care if they crap on my car. I don't care if they swoop at my cat. They are protective, nurturing, territorial, creatures. They will strategically gather at high ground and then one by one, dive-bomb the cat until she runs for cover. They also do this to the dog, who is half the size of the cat, but she is too aloof to let them distract her from her walk, or a friendly face, or a sniff of this or that.

This morning, I watched blackbirds try to fight their way in. Watched them peck and push at the menacing mesh. With a tight flutter and beaks bound with nesting, they jabbed at the obstruction over and over again.

There is a ladder close by. I want to climb it. Take my hedge cutters and snip apart his pompous barricade. I am angry but am still healing and I am physically limited. And if I toss logic into it, I'm not certain my efforts would be effective. I am certain that my actions would cause friction. A close to home friction that would play out for days, and months and years to come.

Today and yesterday, I blame my reconstructive breast surgeon. A small man with a huge ego.  A dismissive, condescending, belittling man cloaked in clout and a vast accumulation of accolades.

I blame him for not reassuring me before or after my surgery. And when I questioned why he didn't inform me that it is not his practice to see his patient before or after surgery, he replied, rather sheepishly..."you didn't ask."  Oh how I loath that excuse.

I blame my smug, superhero, rockstardoc, for not placing my tissue expanders evenly, or correctly.  These deflated non-regulation size basketballs are cumbersome and annoying, especially now that I have begun the skin and muscle stretching "fill" process. Doesn't he realize how meticulous I am? How everything MUST be balanced, and straight, and even. And how difficult it is for me to view my lopsided self.

Healing is hard work. Healing is letting go the way we want to be and holding on to the beginnings of good intensions. Healing is not about competing with ourselves. It isn't something we gain or lose. It is a process.

Today, I am focused on the birds, because they are struggling.
Today, I am focused on myself, because I am struggling.

Today, above all else, I know, I must honor the struggle.



We habitually erect a barrier called blame that keeps us from communicating genuinely with others, and we fortify it with our concepts of who's right and who's wrong. We do that with the people who are closest to us and we do it with political systems, with all kinds of things that we don't like about our associates or our society.  It is a very common, ancient, well-perfected device for trying to feel better.  Blame others.  Blaming is a way to protect your heart, trying to protect what is soft and open and tender in yourself. Rather than own that pain, we scramble to find some comfortable ground.   Pema Chodron


Friday, March 16, 2012

CANCER FREE




Simply put... 
I am cancer free

Everyone...
yes YOU 
and YOU 
and YOU


YOU carried

YOU comforted

YOU caressed

YOU cradled

YOU empowered

YOU healed


You gave me the courage to do what I recognized in my gut, heart and head, needed to be done.

Thank you. 

I love you
I love you
I love you


Always, 

xoMonkeyME

“When love awakens in your life, in the night of your heart, it is like the dawn breaking within you. Where before there was anonymity, now there is intimacy; where before there was fear, now there is courage; where before in your life there was awkwardness, now there is a rhythm of grace and gracefulness; where before you used to be jagged, now you are elegant and in rhythm with your self. When love awakens in your life, it is like a rebirth, a new beginning. ” 

Wednesday, March 14, 2012

Pi and I


Today, the sun is strong and there is not a cloud to be found. I am on the deck, dressed in a wide brimmed hat and a loose fitting nightgown. It is more than just an unseasonably warm day, it is PI, a date that reflects an irrational number and corresponds with Albert Einstein and my husband's birthday.

This time last year we were numbed by images of Japans devastating Tsunami. The year before we were beaten by the wrath of a fierce nor-eastern storm. Hurricane strength winds toppled trees while a steady surge of rain caused town wide flooding. It was the worst recorded storm in Connecticut's history. 

But today, on this happy Pi day, I am focused on my healing.

Today... I feel as sleek as a salamander. I have always admired salamanders.


I remember how, as a young girl, I would spend endless hours in search of salamanders. They would hide in moist dirt shadowed by overgrown vegetation. I would focus on the bend and twist of tethered leaves - evidence of their scurry. I would dig for them with my bare hands. Dig deep below the surface. Dig past slugs and worms and disjointed roots.

I loved the look and feel of packed dirt beneath my nail beds. I still do.

I am thrilled with my new, sleek, salamander physic. Bra's, no longer a necessity, are an optional accessory.

I am that happy little girl again - frolicking in the simplicities of my youth.

Miss Pegged surprised me today with two flats of pansies that I bare-handedly and methodically intermingled with cascading shafts of ivy. Together they will flourish in the sun drenched copper planters that line our 5th floor balcony.

I ignore twinges of burning and tearing and throbbing, and instead, focus on the simple pleasures of digging into rich organic soil. Smiling as it, once again, nestles in my unpolished nail beds.

This greenery shields me from our neighbors across the river. It shields me like a salamander.  Here I can hide topless, or bottomless, or, I can simply rest.  Fully dressed.   

I am a far cry from the misery of last Saturday. Saturday was painful and pathetic.  Saturday was the day I read my post surgery instructions that included the 1-800-suicide hotline number.

I medicated myself all day Saturday and most of Sunday. Got high on valium and vicodin, hoping I'd wake just in time for Tuesday.  Tuesday (yesterday) was my first post-op doctors appointment.  Tuesday was the day they yanked the four drains that sank into the center and surrounding walls of my chest. Tuesday was the day I removed my surgical camisole and released the detachable mini jugs filled with sludge from the oozing wounds of my missing breasts.

Tuesday I was set free.

Today I enjoyed a super sleek me.

Tomorrow, I receive my full pathology report - a microscopic view of the dissection of three of my lymph nodes, both of my breasts, my nipples and my areola.  Even a section of "suspicious looking skin" from the under-fold of my right breast.  Tomorrow, I get a glimpse of what my future holds.


xo, MOnkeyME

I have no special talent. I am only passionately curious.  Albert Einstein


Saturday, March 10, 2012

Cat in a Cage




I've got nothing clever or profound to say but I want you to know that my internet is very slow. Either that or I am very slow.

The songWhat's new Pussycat is stuck in my head. It's better then We at the Pizza Hut, which, thanks to Jay was stuck in my head for over two weeks, but still, that Pussycat is stuck there.  In my head.

I want to go OUT just as the cat and the dog want to go OUT, but I don't know what I'd do if I went OUT and besides, I've got these four obnoxious drains that resemble mini milk jugs, dangling from the bottom of a surgical camisole.  If I walk on all fours and moo I look like a cow with sagging teats. (I need to stop eating cow). They fill up with gunk that oozes from my chest.  I used to pretend the gunk looked like a french martini but now its more pineapplie and it's disgusting.  Maybe if I bedazzle the drains - make little socks to slip over them so you can't see whats in them, but I don't have the energy for that so I guess I'll just stay here in my bed.

I don't need the painkillers. What I'm feeling is more annoying then painful (except for the shots of pain that sneak up out of nowhere or the burning sensation that spreads across my chest and makes me think I caught myself on fire because I know what that feels like).  The only reason I take a painkiller is if I want to sleep and most of the time that is all I want to do.  The painkiller does give you a nice buzz, but still... nothing beats a glass of wine.  So most often, I opt for a sip of wine and a splash of pain over numb to the point where I don't know if I have toes.

Besides, there's nothing wrong with feeling things.

The cat is meowing.  She wants to go OUT. Please stop meowing cat! YES, I want to go OUT too but you don't hear me meowing.  Or maybe you do.

I'm alone for the first time since my surgery.  Mark went OUT.  Part of me wants to do something bad, like eat a bag of potato chips and wash them down with a stick of butter and a bottle of rootbeer.  But I don't have an appetite. I want to watch whatever it is that I want to watch, only noise of any kind annoys me.

I'd call someone but I don't have the energy to talk and everyone's voice annoys me, except for Mark's voice because he's very quiet and he barely talks.  Remind me not to complain about that when I get better.

It's daylight savings this weekend and I am super excited about it! To me, this means one less hour with my drains.  One less hour before I get my pathology report.

The phone is ringing, I hate the sound of the phone ringing and NO I'm not going to answer YOU. Please don't leave a message.  I hate the beep beep beep sound of the answering machine, warning me that I have a message.


I might be suffering from TMA (too much attention). This doesn't mean you should stop reading me, or telling me how wonderful I am, but I am starting to feel undeserving of all the cards, flowers, gifts, food, etc.  I need to thank you all personally. Each gift lifts my spirits but I'll need to do that on my own one day and today, I have no idea how I'm going to do that.

Oh my god, my phone is ringing AGAIN, and now my cell phone is ringing!!! no, no, NO, I'm not going to answer you.  You are just a phone, you can't tell me what to do!!!


How is possible that there is a new Dr. Seuss movie?

I twirled yesterday and today. To me, it seems like a good way to exercise my shoulders so I don't get that "shoulder lock up" they talk about it.  That doesn't sound like fun.  I asked Mark to videotape it and its OUT there somewhere in youtube land - me in my surgical cami with my drains dangling. (if you REALLY want to see it search for greenmonkey27 twirl drains on youtube - but I must warn you, it isn't pretty)

I'm going to take a nap now.... but first I'm going to eat a special shortbread cookies that somebody very special sent me!  YUMMMAYYYY!!!

LOVE to you from Healing MonkeyME........ zzzzzzzzzzzzzzzzz



Mother Daughter Pre-surgical Moments courtesy of Ling Fong's laptop




Wednesday, March 7, 2012

PRIDE



The first time I felt pride in myself  was when I stood on the Junior High School auditorium stage and delivered a passionate speech about why you should vote for me for Student Council treasurer.  I wore a blue gown and curled my hair.

I won.

The second time I felt pride in myself was when i stood on the High School auditorium stage and gave a rebellious speech about why you should vote for me for Student Council Vice President. I wore ripped blue jeans and carried a large green stick (long story).

I won.

My next two moments of pride came at the birth of my children.  A few more flashes of pride came as I crossed the finish line at the New York City Marathon.

In between all that were days when I would coast.  Days when I would arrive half empty, or exit prematurely. Days when I, for whatever reason, lurked in the shadows.

But not March 5th, 2012.  On this day, I faced the darkest of all demons.  I wore nothing. I closed my eyes, and put all my faith in the power of love.

And I won.



My body is challenging me to learn, grow and blossom.  To keep my heart open when facing my fears.

My body is healing.

I have never felt more loved.

I have never felt more beautiful.



xo,MonkeyME



"The most beautiful people we have known are those who have known defeat, known suffering, known struggle, known loss, and have found their way out of the depths. These persons have an appreciation, a sensitivity, and an understanding of life that fills them with compassion, gentleness, and a deep loving concern. Beautiful people do not just happen." ~ Elisabeth Kubler-Ross



Sunday, March 4, 2012

Acceptance


My research is complete. My decisions are made. My bag(s) are packed.

It is time for me to turn inward.

I wanted to write to you all week. Instead I stored everything in my head.

On Friday I had pre-op testing and was told I have a heart murmur. When I asked for more details I was told my heart should go "flub dub" but instead it goes "dub flub." The doctor, a petite asian woman, sounded so adorable saying,"flub dub, dub flub" that I had her to repeat it several more times.

I explained that this could be a side effect of listening to too much dubstep. She didn't get it. I tried to explain dubstep. Still, she didn't get it.

Bassnectar photo courtesy of moviespad


It happened again. This is the second time it happened. The first time it was the radiologist that asked. This time, it was the nurse.

"Are you related to THE Kennedy's?"

"Your resemblance to Eunice is uncanny!" said the radiologist.
"The look is so distinctive" said the nurse.

photo courtesy of google image

The first time I said nothing but gave a coy, don't tell a soul look. The second time I answered, "Yes, on my fathers side."

I'm afraid of what I'll say the next time I'm asked. ("Please don't let another Kennedy die!")

I have been given an arrival time of 9:30 am. I am to report (on time) to the nuclear medicine department where they will inject my breasts with dye and scan me. After the dye reaches its destination - estimated time of arrival one and a half hours -  I will proceed to surgery.  Once I'm under, they will inject another dye that will aid in determining what sentinel lymph nodes will be biopsied.

This is important, I need CLEAN NODES!!! CLEAN NODES!!! Multifaceted, crystal clear, shimmering, clean, lymph nodes.

The breast surgeon will remove the tissue from both of my breasts along with my nipples and areola. Then the reconstructive surgeon will insert tissue expanders that resemble a deflated, non-regulation sized, basketball. About 8 weeks after surgery, and every week or so thereafter, they will slowly inflate them with saline. Four months after that I will be ready for my second surgery where they will remove the tissue expanders and give me my implants. I'm sticking with a full B cup size. If I opt for double D's it will take a year and a half.

At my request, my husband photographed my breasts from every angle. For one shot, I balanced a mimosa in the center of the chest.

I strung your cards on silk ribbon and draped them from a wood beam that stretches across my bedroom ceiling. They are a constant reminder that I am loved.

Yesterday, I shaved. To avoid infection, this is the last time I will use a razor until I'm healed. I also started using a disinfectant cleanser the hospital recommended - guaranteed to keep me germ free for up to 6 hours.

I took my fingernail polish off.  I took my jewelry off.

I burned all my bras. One house guest burnt her panties. I can't tell you who. (see hint in next line)

Miss Pegged bought a ice blue silk pajama's.  They are beautiful. They make me feel pretty and they will make siding in and out of bed easier.

I spent the last week visualizing and affirming positive, radiant, health.  I found a wonderful reiki practitioner who worked with me during the week and will continue when I am home.  I have been reading a book called Prepare for Surgery, Heal Faster by Peggy Huddleston which speaks to me on many levels.

By chance, I discovered my breast surgeon and my reiki practitioner are friends. They both go to the same church. They both have great respect for each other.  Knowing my breast surgeon is a spiritual being is very comforting.

I feel lighter.

I am ready.

All I need now is your prayers. I am asking that you visualize me wrapped in a radiant blanket of love. You decide what that blanket looks like.

By doing this you will prepare me for surgery. You will open me to healing. You will bring me peace and clarity. You will allow my soul to shine.

I love you.

xoMonkeyME



 





  

Thank You For Encouraging My Joy of Writing

Thank You For Encouraging My Joy of Writing
greenmonkeytales@live.com

Shannon E. Kennedy

***

Photo by Joan Harrison